I was first diagnosed with Degos disease July 2002; however, I noticed the first two lesions in March of 2001. 

They itched terribly and I thought that perhaps I had been bitten by a spider or something. 

After a while, the itching stopped. 

The lesions did not change in appearance. In May 2002, I noticed a third lesion. 

I saw my primary care physician, and she immediately did a biopsy. 

This biopsy was inconclusive. 

Then I went to a dermatologist, and I had a repeat biopsy. 

That biopsy came back positive for Degos disease. 

An MRI of the brain, cervical neck, lumbar, and thoracic spine, an EGD and a colonoscopy did not show any evidence of systemic involvement. 

Additionally, I had what seemed like a ton of blood work done. 

The blood work was negative for any other diseases. 

To date, I have had three lesions, and I am taking Tental 400 mg three times a day. My family and I participated in the DNA studies that are currently being done.

Roberta R, Kansas, USA