External Resources
-
Steffens Scleroderma Foundation
Diagnosing rare and ultra-rare conditions like scleroderma and Degos disease can be challenging. Understand these vascular diseases.
-
National Organisation for Rare Disorders (Degos Disease page)
NORD (National Organization for Rare Disorders) has a page on Degos disease.
-
Orphanet
Orphanet is a database dedicated to information on rare diseases and orphan drugs.
-
National Institutes of Health (NIH)
The National Institutes of Health, commonly referred to as NIH, is the primary agency of the United States government responsible for biomedical and public health research.
NIH Referral Process Q&A
Download the PDF to learn how to pursue a referral to the NIH for Degos disease, potentially gaining access to specialized research and treatment options.
Laparoscopy Training Video
WARNING:
IMAGES AND TOPICS COVERED IN THIS VIDEO MAY BE CONSIDERED GRAPHIC TO SOME AUDIENCES. VIEWER DISCRETION IS ADVISED.
Kohlmeier Degos Advocacy in Rare Diseases Talk
WARNING:
IMAGES AND TOPICS COVERED IN THIS VIDEO MAY BE CONSIDERED GRAPHIC TO SOME AUDIENCES. VIEWER DISCRETION IS ADVISED.
Get Social
Follow Degos Disease Foundation for updates, stories, and ways to get involved.
Stay Connected
Sign up for our quarterly email newsletter to be delivered directly to your inbox today!
Support Network
Interested in reaching out to other physicians, check out our Physician Support Network.