Hi, my name is Mary. I live in the Chicago area. 

I was diagnosed with Degos in 2002. 

My current medications include 81 mg of aspirin a day and 40 mg shot of Lovenox a day for the Degos disease. 

I am currently not symptomatic and have had no new lesions that I am aware of since 2002. Also, the stenoses that were diagnosed in late 2002 in my gut area—focal stenosis of the celiac trunk, origin of the superior mesenteric artery, and multiple hepatic artery stenosis are no longer detected on my CT angiograms—which are preformed every couple of years. 

I am followed by a hematologist through the University of Chicago, and I only see him every six months. Currently my clotting factors are normal.

Mary