Loli’s Story
Originally written in Spanish, this is an approximate translation.
My name is Loli, I am 37 years old and I live in Madrid. I was diagnosed with Degos disease in 1996 after I lost vision in my left eye.
I have skin lesions but luckily they have not evolved and although I continue with check-ups with my dermatologist, I do not have any new lesions.
I am optimistic, and I think that it will not develop more lesions and that I will not have intestinal or brain problems. You have to think positively, live and enjoy life, and know that life is worth it.
If some patient of this disease of Spain (or any part of the world) would like to contact me I would be delighted. My email address is lolaherndez@hotmail.com.
Loli
Loli’s Story in Spanish, as Originally Written
Me llamo Loli, tengo 37 años y vivo en Madrid y me diagnoticaron la enfermedad de Degos en 1996 despues de que perdiera la vision del ojo izquierdo, tengo lesiones en la piel pero por suerte no han evolucionado y aunque sigo con revisiones con mi dermatóloga no tengo nuevas lesiones y soy optimista y pienso que no se me va ha desarrollar y que no tendré problemas intestinales ni cerebrales. Hay que pensar en positivo, vivir y disfrutar que la vida merece la pena. Si algún paciente de esta enfermedad de España (o de cualquier parte del mundo) se quiere poner en contacto estaré encantada. Mi correo es lolaherndez@hotmail.com.
Loli