I have had my story here for a long time, so it seems time to update. 

I have not made any progress with a “fix” for Degos disease, but I have found comfort in having just one doctor now. 

He treats my symptoms as they arise, and I have only gained a few lesions over the last few years, and Trentol has helped me. 

I do see improvements on my skin with that. 

For the aches and pains, I am on Vioxx. 

I am not focused on the past as much as the future. 

It’s been seven years this month since my diagnosis. And I still survive. 

I have just been married for five years and hope that my doctors will allow us to have a child. Let’s hope…

Janell